Chronic Illness, Disability, Personal Experiences, Transverse Myelitis

The Worst Parts

When you’re diagnosed with TM (or anything similar), and you’re paralyzed, you freak out and wonder if it’s forever. Because being paralyzed, being “trapped” in a body that can’t move the way you want it to, seems like the worst thing ever. You don’t think it could happen to YOU, and when it does it’s scary. But it’s easy to adapt to, easy to get used to. Sure, it’s not ideal; I mean, no one wants to be in a wheelchair. No one wants to be unable to walk, run, jump, and all that. Nobody wants that part of their life taken away, but when it happens, it doesn’t end up being that bad. The pain, fatigue, flare-ups, etc. are what really make you miserable. You can do anything an able-bodied person can do when you’re disabled; it just takes some creativity sometimes. But the other complications are what really hold you back and make you feel trapped. That’s what bothers me daily, what I wish every day to escape from.

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